"The love of my life is the love between friends."
- (sent by Jess)
When I think of Fibromyalgia, I think of the over-emphasis the annoyance of dealing with an invisible disorder, and the confidence that all my problems are caused by Fibromyalgia…because that is the only thing that makes sense to doctors.
But it’s not true. And before you all start, and tell me I don’t know what the truth is, I can’t handle the truth, and that I’m wrong…believe me…I have gone through all those reasons. And the truth is something the doctors cannot see.
I have Lupus, also known as SLE. And I have Fibromyalgia. I have both. A lot of people have both these disorders, okay? I’m not in denial. I know I have Fibromyalgia. I do not doubt my doctors. I just KNOW I have Lupus.
But I feel like the doctors are putting an over-emphasis on my Fibromyalgia symptoms. Sure, I have pain some days, but there are days when my organs are inflamed. I do have bad fibro days, but those days are becoming few and far between.
It’s not just Fibromyalgia. It’s Lupus too.
I don’t think it’s fair to blame everything on Fibromyalgia, just like I don’t think it’s fair to blame everything on Lupus. We have to take some responsibility for our actions, you know?
I know the doctors believe I have Lupus and just can’t prove it…but I wish that bad days weren’t blamed on my Fibro because that just isn’t true.
I’m sorry…but that just is the truth.
There are going to be people who disagree with me and think I am simply in denial. Believe me, I’m not. I’ve already been through that point… It’s not denial. I’ve tried living as a patient who just suffered with Fibromyalgia…and then…I got worse.
I butted heads with everyone because I thought I had Lupus…they couldn’t make themselves see the truth. But the thing is, I knew I wasn’t lying. And now that I’ve made things right…I’m happier.
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