Me

Hi everyone. I have Lupus. Lupus is an incurable Autoimmune disorder. It causes me pain almost everyday and makes me cry. This is my story.

Saturday, February 19, 2011

Link To Poems

Link to "The Wolf": Poems about Lupus

I love to write but writing those poems was hard to me because it dug up a lot of old feeling. I'm okay now but I was so sick to my stomach writing those poems.
I hate that beast!!!

Screaming Nurse

It’s very painful to write about this disease
And the more I write
The more pain I feel
Nonetheless I push on
Determined to pass the truth along
Call me strong
Call me weak
It doesn’t matter
Because we are all people
We all suffer…
And my suffering
Is *not* in vain

Meditation

Writing about this horrible disease brings me pain
Yet I write about it anyway
I’m a foolish woman
To take such a risk
But I want to
I want to live
I want people to hear me
I shudder thinking about the judgment I will face
For just simply being me
I want out
I want out
But I can’t escape this fight
It burns from the inside
Tears at my soul
Please, lord, let me finally be free

Crippled


No matter where I go
It always finds me
The purple beast
With glowing eyes
The eyes blood red
The mouth, full of blood
The snake follows me everywhere
Tells me I’m going to die
Tells me I’m lying
It’s getting so hard to fight
I want to give up but I cannot
I still have a role
I’m a warrior
I have to continue helping others
And then….
Help myself…
Because only I can put
The pieces back together

The Faust Of Love



I want to be a butterfly
Flying freely
Away from sorrow
And away from pain
Flying through the night sky
Without a care in the world
Now that’s the life for me
Flying free
Free from everything
I want my freedom
My freedom from everything

Sorrow


Will there ever be a cure?
I don’t know
Will people ever understand?
I don’t know
I want a cure
I want release
I want everything
I could never have
But one thing I do have
Is strength
I am a strong and powerful warrior
I was raised from the ruins of defeat
I was reborn as a different person
I didn’t recognized myself then
I tried to run from who I was
But I couldn’t
Now I’m running into the fight
So I can win.

Unconcious



The fight still rages on
I feel worn and weak
Yet I still go on
I keep hoping for the light
The light to show me the way
Because fighting everyday
Is hard on my soul
I want to give up sometimes
But then I stop myself in my tracks
And tell myself the truth
There is always hope
No matter how bleak things may be
One day I’ll die
But I’m not afraid
I’ll be going to a better place
And when I do
I’ll know I did
What I came here to do